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Community Action Programme on Rare Diseases
1999 to 2003 http://europa.eu.int/comm/health/ph/programmes/rare/index_en.htm

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Register of designated Orphan Medicinal Products
2002 http://pharmacos.eudra.org/F2/register/orphreg.htm

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EuropaBio fact sheet on orphan drugs and rare diseases  http://www.europabio.org/pages/eu_workgroups_detail.asp?do_id=479

 

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